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Old 09-03-2015, 10:05 AM  
Saccopoo Saccopoo is offline
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Brain Tumor

So, that shit is fun.

Started having some really cool and powerful deja-vu at work on Tuesday, then a strong ominous feeling set in and then started seeing small, flashing rainbow colored lights under the brim of my hat. Figured that it was either a premonition about an earthquake (like animals get) as Salt Lake City sits on a fault line, either that or I was hitting a major fatigue wall as I had been working long hours and had been hitting the gym pretty hard while not getting as much sleep as required in addition to cutting carbs from the diet. Anyway, I got a little freaked out, went to the bakery, grabbed a croissant and detoured it and everything kinda went back to normal.

Later on, started getting the deja-vu again (and it was super good shit - like I was seeing the future and shit - and it even had a soundtrack going along with it), and that's about all I can remember. Apparently I turned to the guy next to me, said something about tripping my balls off massively and told him I was going to puke, then my eyes rolled back into my head and I passed out and hit the floor like a sack of potatoes.

Came to with the EMT dude holding a ice pack to the back of my mellon on a huge goose egg. They were going to call an ambulance to take me to the ER and I told them it was nothing and I was fine. Fortunately the HR guy was standing there and convinced me to go to the ER. When I got there they did a CT scan to check for concussion probabilities.

Dude came back into the room with the radiologist and said "Um, bad news. There is a mass in the right side of your brain and we want to do an MRI for more detail."

"Well, shit."

So they did that and sure enough, there is a golf ball sized mass sitting there with a bunch of fluid around it. Nuerosurgeon (chief resident who looks like he's 17, comes in and says that they want to schedule surgery on Friday morning. Okies.

So, I'm sitting here in the Neurology wing of the University of Utah hospital (which is highly regarded) worrying about these guys going to the Utah/Michigan game tonight and coming back into surgery tomorrow hungover as shit.

Bonus is, I've had two really hot nurses in a row the past two nights. Tried to convince both to give me a leisure massage and body shampoo, but they didn't go for it though I had a girl from work come by last night to visit who wanted to give me a hummer.

Anyway, I'm feeling pretty fortunate that shit went down the way it did, because I most likely would have blown it off for ever until it became really bad. (Although, I am going to ask them if it's benign if they can just keep it in there because I was digging the deja-vu bordering on omnipotence.)

Also I hear that the chief neurosurgeon is totally old school and I think I saw him sharpening his hacksaw on a rusty pipe outside and telling the nurse that she should find his favorite spoon.
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Old 12-06-2015, 11:49 AM   #406
TigeRRUppeRRcut TigeRRUppeRRcut is offline
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Incredibly impressed with the Neurological Acute Care unit at the University of Utah hospital. Very professional and knowledgeable. Follow up with the people at Huntsman as been equally good.

As shitty as this deal is, their professionalism and competency at all levels has been superb and has made this procedure much easier.
Huntsman cancer gets a lot of press in the medical journals I read for having outstanding facilities and removing the feeling of being in just another hospital. Glad to hear you have been getting great care there
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Old 12-06-2015, 11:52 AM   #407
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Originally Posted by TigerUppercut View Post
Huntsman cancer gets a lot of press in the medical journals I read for having outstanding facilities and removing the feeling of being in just another hospital. Glad to hear you have been getting great care there
Every level has been absolutely terrific on their customer service, attitudes and competency.

Even the kids doing the valet service are terrific.

Someone in management has done a very nice job keeping it running the way it does.
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Old 12-06-2015, 12:07 PM   #408
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It was one of the residents so you probably wouldn't remember them doing the scut work in the background
You're probably right. I'm terrible with names anyway.

Small world.
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Old 12-06-2015, 12:21 PM   #409
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Old 01-28-2016, 07:38 AM   #410
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How is treatment going, Sac?
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Old 05-02-2016, 10:57 PM   #411
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Anyone heard from Sac? It's not like him to miss the entire draft.

Hope you're doing well, Sac.
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Old 05-03-2016, 05:33 AM   #412
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Anyone heard from Sac? It's not like him to miss the entire draft.

Hope you're doing well, Sac.
Yeah, would love to hear how he is doing.
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Old 05-03-2016, 05:44 AM   #413
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Sac's last activity was 3-30-16 on here. Not a good sign.
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Old 05-03-2016, 06:01 AM   #414
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Sac's last activity was 3-30-16 on here. Not a good sign.
Anyone know how to get in touch with him ?
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Old 05-03-2016, 07:46 AM   #415
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Old 10-12-2016, 10:40 AM   #416
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Okay, apparently I'm not yet dead.

So, here's the update:

The May, 2016 MRI was fantastic. Showed reduction of every area that could have been interpreted as cancerous. Docs were amazed.

When I sat down with the oncologist in July and looked at the MRI, it was like "whelp, there goes that shit." Lots of spurious "clouds" in the right side around the original tumor area.

August 22016 MRI looked worse and when the oncologist and nurse came into the room, you could tell by the look on their faces that they were going to hand over a really tasty shit sandwich. He gave me 3 to 6 months at that point based on the information he was looking at.

Apparently the Cancer decided to tell the Temodar oral chemotherapy I was taking to go **** itself. Doc said that it can quickly develop a resistance to the chemo, which is likely what happened.

He suggested another route and I've been on Avastan, which is an infusion chemotherapy that also acts as a type of coagulant which may slow down the flow of blood to the cancerous area, which could have been the reason for the sudden growth that he saw in July/August.

He stated that it wasn't a cure and would most likely net me an additional 3 to 6 months at best. However, he's seen several cases where it's worked really well, but some that it hasn't done anything. So, I've been on that since September. No real side effects that I can notice and my labs keep coming back perfect.

I have noticed that the periphrial vision in my left eye to the left is pretty much gone. But I don't know if that's a lingering effect from the initial, surgery, radiation treatment or has something to do with the new cancer growth we've seen the past couple of months. Makes things feel "trippy."

Doc said that I would notice stuff going to pot on the left side of my body first when it started to go south, so I kind of pay attention to any little tick on that side more than I probably should.

But other than that, I haven't really had anything else in terms of negatives. Oh, my stomach has been "growling" a lot and loudly. That's about it.
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Old 10-12-2016, 10:44 AM   #417
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Originally Posted by Saccopoo View Post
Okay, apparently I'm not yet dead.

So, here's the update:

The May, 2016 MRI was fantastic. Showed reduction of every area that could have been interpreted as cancerous. Docs were amazed.

When I sat down with the oncologist in July and looked at the MRI, it was like "whelp, there goes that shit." Lots of spurious "clouds" in the right side around the original tumor area.

August 22016 MRI looked worse and when the oncologist and nurse came into the room, you could tell by the look on their faces that they were going to hand over a really tasty shit sandwich. He gave me 3 to 6 months at that point based on the information he was looking at.

Apparently the Cancer decided to tell the Temodar oral chemotherapy I was taking to go **** itself. Doc said that it can quickly develop a resistance to the chemo, which is likely what happened.

He suggested another route and I've been on Avastan, which is an infusion chemotherapy that also acts as a type of coagulant which may slow down the flow of blood to the cancerous area, which could have been the reason for the sudden growth that he saw in July/August.

He stated that it wasn't a cure and would most likely net me an additional 3 to 6 months at best. However, he's seen several cases where it's worked really well, but some that it hasn't done anything. So, I've been on that since September. No real side effects that I can notice and my labs keep coming back perfect.

I have noticed that the periphrial vision in my left eye to the left is pretty much gone. But I don't know if that's a lingering effect from the initial, surgery, radiation treatment or has something to do with the new cancer growth we've seen the past couple of months. Makes things feel "trippy."

Doc said that I would notice stuff going to pot on the left side of my body first when it started to go south, so I kind of pay attention to any little tick on that side more than I probably should.

But other than that, I haven't really had anything else in terms of negatives. Oh, my stomach has been "growling" a lot and loudly. That's about it.
I'm very happy to read this!
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Old 10-12-2016, 10:45 AM   #418
The Franchise The Franchise is offline
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Originally Posted by Saccopoo View Post
Okay, apparently I'm not yet dead.

So, here's the update:

The May, 2016 MRI was fantastic. Showed reduction of every area that could have been interpreted as cancerous. Docs were amazed.

When I sat down with the oncologist in July and looked at the MRI, it was like "whelp, there goes that shit." Lots of spurious "clouds" in the right side around the original tumor area.

August 22016 MRI looked worse and when the oncologist and nurse came into the room, you could tell by the look on their faces that they were going to hand over a really tasty shit sandwich. He gave me 3 to 6 months at that point based on the information he was looking at.

Apparently the Cancer decided to tell the Temodar oral chemotherapy I was taking to go **** itself. Doc said that it can quickly develop a resistance to the chemo, which is likely what happened.

He suggested another route and I've been on Avastan, which is an infusion chemotherapy that also acts as a type of coagulant which may slow down the flow of blood to the cancerous area, which could have been the reason for the sudden growth that he saw in July/August.

He stated that it wasn't a cure and would most likely net me an additional 3 to 6 months at best. However, he's seen several cases where it's worked really well, but some that it hasn't done anything. So, I've been on that since September. No real side effects that I can notice and my labs keep coming back perfect.

I have noticed that the periphrial vision in my left eye to the left is pretty much gone. But I don't know if that's a lingering effect from the initial, surgery, radiation treatment or has something to do with the new cancer growth we've seen the past couple of months. Makes things feel "trippy."

Doc said that I would notice stuff going to pot on the left side of my body first when it started to go south, so I kind of pay attention to any little tick on that side more than I probably should.

But other than that, I haven't really had anything else in terms of negatives. Oh, my stomach has been "growling" a lot and loudly. That's about it.
Hang in there man. And let the mods know what's going on. This place went nuts when we thought you had passed.
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Old 10-12-2016, 10:46 AM   #419
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good to see you around, Sac.

You have been in many positive thoughts and prayers on this Board. We're here if there is anything we can do for you.
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Old 10-12-2016, 10:51 AM   #420
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Great news Sac. Like Lone, you keep fighting and we'll keep praying..
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