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Old 08-11-2014, 10:36 PM  
Lonewolf Ed Lonewolf Ed is offline
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Bad news

SimplyRed started a thread about me not long ago. I thought I'd start one with the latest. I got very bad news today. My colon cancer got into my liver and the doc said it is stage 4. She said it can't be cured. Without treatment, I might last 10 weeks. Even with chemo, the best I could hope for is maybe 3 years. I'm scheduled to have a port put in tomorrow, Tuesday, at 1 pm. They start me on 3 types of chemo on Thursday.
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Old 08-16-2014, 04:13 AM   #166
Lonewolf Ed Lonewolf Ed is offline
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Originally Posted by Buehler445 View Post
Be careful. Wife took those while she was pregnant and they plugged her up. And her prenatal vitamins had a stool softener.

No idea what you're on but the ones they give to preggos plugged her up.
I have both ends covered as they suggested a laxative and an anti-runs over the counter meds.

My first full day after starting chemo went pretty darned well. I never felt nauseated, no headaches, dizziness, or the like. My appetite was good and I ate more than I had since 5 days before. I took my anti-nausea pills first thing and another of the two kinds with breakfast, so I am treating those like my new vitamins. I never had a metallic taste in my mouth, either, but breakfast was a bit interesting. I had 2 boiled eggs, a banana, yogurt, and juice. The banana tasted normal, but the back of my mouth reacted like I had a lemon drop. Now, my lime yogurt was sour, but it was lime, so it should have been. My only problem with it is I am now sensitive to cold, so my first bite felt prickly since it was not close enough to room temp yet. The eggs and juice were normal experiences.

I was tired but not enough to nap. I had a snack, then lunch and another med that I am not supposed to take after 6 pm since it can keep me awake. That kind, I will be taking with breakfast and lunch since they are two-a-days. I did put down a bit more than the 3 quarts of liquid over the course of my day, so that is why I am awake and posting now. Hadda take care of a little something!

I started getting hiccups especially if I ate almonds, cashews, or other mixed nuts, but found that a few swallows of water would knock that back. The nurse never mentioned hiccups as a side effect, so maybe I just had the hiccups. I don't want to start thinking every sneeze, sniffle, cramp, or twinge must be cancer or chemo related. They said my cold sensitivity will become cumulative, so I scratched my head upon reading a list of foods they recommend I eat and seeing ice cream there. Milk is going to be a challenge since I'll have to heat it past the cold stage if I eat cereal or even want to just drink a glass. Before this, I loved a well chilled glass of skim to just chug down. They also said I can have beer on my off weeks, but I'd have to drink it European style. Heh, they don't know me too well, yet. All the beers I love can be drunk at room temp, and some even taste their best then.

So, I am very thankful to God for my first day after chemo, because it was a very good day. I hope the cancer had the opposite kind of day. It may yet kill me, but I want to throw punches and kicks at this foul unwanted invader so that it wonders what it had been tangling with. Back to bed with me, and let's see how Day 3 goes. I look forward to getting the pump unhooked at 1:30 pm. It's a bit of a nuisance having to wear a fanny pack with the pump in it, and set it beside my bed with the tube stretched out, hoping I don't roll over and pull it out or off onto the floor. They sent a hazmat suit just in case there is a spill. Wait a sec... the stuff being pumped IN ME for 46 hours if it somehow gets on the floor, I need to clean up with a hazmat suit on??
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Old 08-16-2014, 09:40 AM   #167
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Originally Posted by Lonewolf Ed View Post
They also said I can have beer on my off weeks, but I'd have to drink it European style. Heh, they don't know me too well, yet. All the beers I love can be drunk at room temp, and some even taste their best then.

So, I am very thankful to God for my first day after chemo, because it was a very good day. I hope the cancer had the opposite kind of day. It may yet kill me, but I want to throw punches and kicks at this foul unwanted invader so that it wonders what it had been tangling with.
Glad to hear this. Keep up the good fight and enjoy those beers when you can. Everyone here is pulling for you.
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Old 08-16-2014, 09:42 AM   #168
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Glad to hear this. Keep up the good fight and enjoy those beers when you can. Everyone here is pulling for you.
Yep, we'll except me. I'm tugging for LEd. Damn internet porn!
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Old 08-16-2014, 09:43 AM   #169
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I have both ends covered as they suggested a laxative and an anti-runs over the counter meds.

My first full day after starting chemo went pretty darned well. I never felt nauseated, no headaches, dizziness, or the like. My appetite was good and I ate more than I had since 5 days before. I took my anti-nausea pills first thing and another of the two kinds with breakfast, so I am treating those like my new vitamins. I never had a metallic taste in my mouth, either, but breakfast was a bit interesting. I had 2 boiled eggs, a banana, yogurt, and juice. The banana tasted normal, but the back of my mouth reacted like I had a lemon drop. Now, my lime yogurt was sour, but it was lime, so it should have been. My only problem with it is I am now sensitive to cold, so my first bite felt prickly since it was not close enough to room temp yet. The eggs and juice were normal experiences.

I was tired but not enough to nap. I had a snack, then lunch and another med that I am not supposed to take after 6 pm since it can keep me awake. That kind, I will be taking with breakfast and lunch since they are two-a-days. I did put down a bit more than the 3 quarts of liquid over the course of my day, so that is why I am awake and posting now. Hadda take care of a little something!

I started getting hiccups especially if I ate almonds, cashews, or other mixed nuts, but found that a few swallows of water would knock that back. The nurse never mentioned hiccups as a side effect, so maybe I just had the hiccups. I don't want to start thinking every sneeze, sniffle, cramp, or twinge must be cancer or chemo related. They said my cold sensitivity will become cumulative, so I scratched my head upon reading a list of foods they recommend I eat and seeing ice cream there. Milk is going to be a challenge since I'll have to heat it past the cold stage if I eat cereal or even want to just drink a glass. Before this, I loved a well chilled glass of skim to just chug down. They also said I can have beer on my off weeks, but I'd have to drink it European style. Heh, they don't know me too well, yet. All the beers I love can be drunk at room temp, and some even taste their best then.

So, I am very thankful to God for my first day after chemo, because it was a very good day. I hope the cancer had the opposite kind of day. It may yet kill me, but I want to throw punches and kicks at this foul unwanted invader so that it wonders what it had been tangling with. Back to bed with me, and let's see how Day 3 goes. I look forward to getting the pump unhooked at 1:30 pm. It's a bit of a nuisance having to wear a fanny pack with the pump in it, and set it beside my bed with the tube stretched out, hoping I don't roll over and pull it out or off onto the floor. They sent a hazmat suit just in case there is a spill. Wait a sec... the stuff being pumped IN ME for 46 hours if it somehow gets on the floor, I need to clean up with a hazmat suit on??
kick some ass!!!
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Old 08-16-2014, 09:45 AM   #170
Lonewolf Ed Lonewolf Ed is offline
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Yep, we'll except me. I'm tugging for LEd. Damn internet porn!
I'm glad someone can! After that port they put in me on Tuesday, I am not to strain the upper body or lift over 5 lbs. for a total of 10 days.
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Old 08-16-2014, 10:21 AM   #171
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I'm glad someone can! After that port they put in me on Tuesday, I am not to strain the upper body or lift over 5 lbs. for a total of 10 days.
Your cack is >5 lb? Nice going!
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Old 08-16-2014, 10:22 AM   #172
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Your cack is >5 lb? Nice going!
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Old 08-16-2014, 10:28 AM   #173
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I picture Mr. C with a bloody nose from your chemo right hook.

Let the beat down continue.

Best of luck and glad to hear you had a good day. Continued well wishes to you.
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Old 08-19-2014, 01:27 PM   #174
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I have a small bank account in Denmark, or my mother does and I am the second named on the account. I tried to email them about adding a beneficiary because I'd like to see that money go to my family, not the gubmint. I got an autoreply from the bank employee I've dealt with before... she will be away until OCTOBER 20!! Jeez, it must be sweet to land a job in a bank over there...
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Old 09-02-2014, 09:03 AM   #175
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Hey, all. I start my second round of chemo tomorrow (Wednesday Sept. 3rd) and could use all the prayers and good thoughts once again. The first round went far better than I could have hoped. None of the nasty side effects hit me. They told me I certainly would have the runs, too, but that never happened. I had some minor side effects, though, which I can deal with. For 2 days, any sort of nuts that I ate would make me hiccup, so I'll just avoid the peanuts, cashews, almonds, and pecans after today for a week. Everything I ate tasted normal, but many foods made my mouth react like I had bitten into a super sharp cheddar. My appetite was fine, though, and maybe even increased. They said I'd lose more weight, too, but I put on 2 lbs. since they last saw me. I hope it's closer to 3 lbs. by tomorrow when they weigh me. I want to see them scratching their heads wondering how I did it!

The one thing I am a bit worried about is the cold sensitivity which they say is cumulative as treatments go on. I did feel that during round one and it left me for the most part before I went to Vegas on the 25th of August. I'm used to drinking room tempertaure liquids from back when I ran deliveries. A bottle of water in that old delivery truck never stayed cold for long, unless it was winter. So if the cold sensitivity gets worse for me, I am prepared, but having to wear gloves to take anything out of the 'fridge just sucks. I like 2 boiled eggs with breakfast, and having to take them out of there with gloves on, well... I might end up having scambled eggs instead.

Also, I actually like it cooler out. My ideal day is 52 or 53 degrees, and I can be out in shorts and a t-shirt as long as it isn't raining or extremely windy and I will be very comfortable. I don't want to have to bundle up and wear a muffler to keep cool air out of my lungs. I know that if I have to, then I have to, but I never have to like it. Maybe since I do like it cooler out, this cold sensitivity won't be as bad for me as it might be for others. I'll find out, I suppose.
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Old 09-02-2014, 09:08 AM   #176
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Hey, all. I start my second round of chemo tomorrow (Wednesday Sept. 3rd) and could use all the prayers and good thoughts once again. The first round went far better than I could have hoped. None of the nasty side effects hit me. They told me I certainly would have the runs, too, but that never happened. I had some minor side effects, though, which I can deal with. For 2 days, any sort of nuts that I ate would make me hiccup, so I'll just avoid the peanuts, cashews, almonds, and pecans after today for a week. Everything I ate tasted normal, but many foods made my mouth react like I had bitten into a super sharp cheddar. My appetite was fine, though, and maybe even increased. They said I'd lose more weight, too, but I put on 2 lbs. since they last saw me. I hope it's closer to 3 lbs. by tomorrow when they weigh me. I want to see them scratching their heads wondering how I did it!

The one thing I am a bit worried about is the cold sensitivity which they say is cumulative as treatments go on. I did feel that during round one and it left me for the most part before I went to Vegas on the 25th of August. I'm used to drinking room tempertaure liquids from back when I ran deliveries. A bottle of water in that old delivery truck never stayed cold for long, unless it was winter. So if the cold sensitivity gets worse for me, I am prepared, but having to wear gloves to take anything out of the 'fridge just sucks. I like 2 boiled eggs with breakfast, and having to take them out of there with gloves on, well... I might end up having scambled eggs instead.

Also, I actually like it cooler out. My ideal day is 52 or 53 degrees, and I can be out in shorts and a t-shirt as long as it isn't raining or extremely windy and I will be very comfortable. I don't want to have to bundle up and wear a muffler to keep cool air out of my lungs. I know that if I have to, then I have to, but I never have to like it. Maybe since I do like it cooler out, this cold sensitivity won't be as bad for me as it might be for others. I'll find out, I suppose.
You've already bucked multiple typical side effects, if anyone can buck another its you, old chap

Keep fighting the good fight!
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Old 09-02-2014, 09:08 AM   #177
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Old 09-02-2014, 09:09 AM   #178
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Originally Posted by Lonewolf Ed View Post
Hey, all. I start my second round of chemo tomorrow (Wednesday Sept. 3rd) and could use all the prayers and good thoughts once again. The first round went far better than I could have hoped. None of the nasty side effects hit me. They told me I certainly would have the runs, too, but that never happened. I had some minor side effects, though, which I can deal with. For 2 days, any sort of nuts that I ate would make me hiccup, so I'll just avoid the peanuts, cashews, almonds, and pecans after today for a week. Everything I ate tasted normal, but many foods made my mouth react like I had bitten into a super sharp cheddar. My appetite was fine, though, and maybe even increased. They said I'd lose more weight, too, but I put on 2 lbs. since they last saw me. I hope it's closer to 3 lbs. by tomorrow when they weigh me. I want to see them scratching their heads wondering how I did it!

The one thing I am a bit worried about is the cold sensitivity which they say is cumulative as treatments go on. I did feel that during round one and it left me for the most part before I went to Vegas on the 25th of August. I'm used to drinking room tempertaure liquids from back when I ran deliveries. A bottle of water in that old delivery truck never stayed cold for long, unless it was winter. So if the cold sensitivity gets worse for me, I am prepared, but having to wear gloves to take anything out of the 'fridge just sucks. I like 2 boiled eggs with breakfast, and having to take them out of there with gloves on, well... I might end up having scambled eggs instead.

Also, I actually like it cooler out. My ideal day is 52 or 53 degrees, and I can be out in shorts and a t-shirt as long as it isn't raining or extremely windy and I will be very comfortable. I don't want to have to bundle up and wear a muffler to keep cool air out of my lungs. I know that if I have to, then I have to, but I never have to like it. Maybe since I do like it cooler out, this cold sensitivity won't be as bad for me as it might be for others. I'll find out, I suppose.
Hang in there bud, stay positive and whip this!

Prayers & Thoughts your way.
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Old 09-02-2014, 09:14 AM   #179
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I work all the time and tend to miss some time with my family. After reading your story I have made it a goal to carve out a little more one-on-one time with my kids.

I hope you can continue to respond well to treatments with minimal side effects. Thinking of you...
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Old 09-02-2014, 09:16 AM   #180
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I don't really know what to say other than I really hope you get better, dude.
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