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Old 01-24-2015, 04:51 PM  
Lonewolf Ed Lonewolf Ed is offline
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Good news

I thought I'd start a new thread for updates on my cancer treatments and whatever else is going on, since the bad news thread title is misleading now.

My last treatment went better than the previous two and my chest wound is still closed up, which is a good thing. My arm is getting slightly stronger and I hope to resume lifting dumbbells next week. I need to build up my strength again, because I am going back to Denmark in May and I am extremely pumped about that! I'd like to be able to schlepp my own checked bag and not have someone else lifting it for me.

It's going to be a fabulous trip, 6 weeks and a couple of days for me. My brother is going along as well as my friends Chipp and Rod. Chipp is staying close to 3 weeks and has not gone with me over there since 2006 so he is also very pumped to be going. It will be Rod's first trip and he will be there for 2 weeks. I will get to be a tour guide. Also, I am throwing a party in my favorite pub of all, the wonderful, ever-magnificent Irish House in Aalborg on May 7th. The owner and I are friends and he will give me a little discount. We'll have Irish stew and brews in the cellar and I hope to have around 25 family and friends there. I might bill it as the "Fu** Cancer Party." A few months back, I was not sure I'd ever be able to go over to Denmark again or if I'd even be alive, but the cancer hasn't gotten me yet. I'm doing a number on it, instead.

Some other cool things I plan to do when I am back in my ancestral lands include a wine tasting in a castle, touring another castle and the northernmost manor home in the country, and visiting Skagen, the top of Denmark, where you can stand on a little patch of beach and have one foot in one sea and one in another. They also have a brewpub up there I am wanting to check out. I will start and end my trip in Aalborg and spend 5 weeks in an apartment I rent that is very close to the beach. I can hardly wait for May 4th to roll around!
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Old 02-14-2017, 02:17 PM   #2026
Lonewolf Ed Lonewolf Ed is offline
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Here are two things I am looking forward to in Aalborg.
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Old 02-14-2017, 03:39 PM   #2027
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Originally Posted by Lonewolf Ed View Post
Here are two things I am looking forward to in Aalborg.
My God that looks fun!
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Old 02-14-2017, 03:52 PM   #2028
Lonewolf Ed Lonewolf Ed is offline
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My God that looks fun!
Oh yes, it is. The picture of the large structure was actually one man's house, built back in 1624. There is a pub in the former wine cellar and that is where the King Christian IV Guild has the induction ceremonies. I am a lifetime member of the Guild, having been inducted three years ago, and have my own key to the former secret back entrance to the place. The second picture is of my favorite Danish pastry called vienerbrød, which simply means Vienna bread.
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Old 02-15-2017, 12:31 PM   #2029
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Originally Posted by Lonewolf Ed View Post
Oh yes, it is. The picture of the large structure was actually one man's house, built back in 1624. There is a pub in the former wine cellar and that is where the King Christian IV Guild has the induction ceremonies. I am a lifetime member of the Guild, having been inducted three years ago, and have my own key to the former secret back entrance to the place. The second picture is of my favorite Danish pastry called vienerbrød, which simply means Vienna bread.
It looks very crispy, which I like. Is it very buttery like a French or Swiss pastry? What fruits or savory items do they add?
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Old 02-16-2017, 12:41 PM   #2030
Lonewolf Ed Lonewolf Ed is offline
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Originally Posted by scho63 View Post
It looks very crispy, which I like. Is it very buttery like a French or Swiss pastry? What fruits or savory items do they add?
I wouldn't call it crispy, but firm. The layers seem to be as thin as wax paper. It's not extremely buttery and they add chocolate, plain sugar frosting, and the yellow stuff is... hmm, what exactly is it? I never can quite tell, but it's good! Other Danish pastries have strawberry, raspberry, peach, and apple as the most common fruits. Marzipan is also common.
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Old 02-16-2017, 12:59 PM   #2031
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I went to the cancer research center yesterday to meet with the doc and go over the paperwork and insurance stuff. We talked quite a while about my medical history, my trip, and the possible treatment I may receive. There could be a problem with me starting for 2 months and being off for 2 months, but he said DO NOT cancel my trip. He saw nothing that would make him say it was a bad idea to go concerning my health. That was actually a big relief. He totally understands and supports patients needing that time away and I didn't have to convince him that it makes me feel alive again to be away from doctors, needles, and pills.

My treatment is not unique to the cancer center, but a national endeavor, so my doc is not the one in charge of it all, but is in charge of the treatment with me. He wanted to stress that while there are experiments to run, such as a drug cocktail, while I am on the treatment to see how my body reacts to them and how long it takes to metabolize and rid them from my body, I am not a lab rat. He said if he were to just administer a drug on a whim to see what it does to me, I could have his ass for assault and he'd lose his license. The drugs I'd have to take are nothing scary, just caffeine, warfarin, and two others I can't spell, but they are all common things people take. So, for example, if caffeine skews my blood count numbers or makes me feel ill, that data will be collected and one day when the treatment drug is FDA approved, it would probably say on the bottle, "avoid caffeine with this product" or if nothing happens, then it won't. I see and understand the value of the drug cocktail. And damn the luck, I *still* won't be able to have any grapefruit juice.

There will be two days where I have to stay at the clinic for 13 hours, which will suck massively, but hey, if I gotta, I gotta. And as if I have not suffered enough humiliation these past 2.5 years, and many of you on here may be envious of this part, I will have to keep... a poo diary. It will be done on something looking like a cell phone. It has 8 different pictures of turds and I press the number that mine resembles the most. The ones I saw were things that have never come out of me: elk droppings, a photoshopped brown banana, and something looking like some weird coral reef. If the most common side effect hits me, the runs, I hope there is a photo of wall spackle on there so I can press that number.

One of the plus side of things is that this treatment is not via I.V., but in pill form. They will have to draw blood a lot, and that will be done through my port. I have a 26 or 27 page consent form with info about the treatment, side effects, what sort of things I must do, and so on, and they sent me home with it, urging me not to just sign the thing, but go over it in depth and talk to family and friends about it first. I like their approach to treatment and it was also stressed that their top priority is my well being, so once again, I am not some lab rat and they give me X just to see what it does to me. Second is treating the cancer and hopefully having good results where my numbers don't rise but go down and I feel better.
These all sound like OUTSTANDING developments
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Old 02-16-2017, 02:01 PM   #2032
Lonewolf Ed Lonewolf Ed is offline
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All of them? Did you miss the part where I STILL can't have any grapefruit juice? I want some soooooooo bad!
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Old 02-16-2017, 02:04 PM   #2033
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All of them? Did you miss the part where I STILL can't have any grapefruit juice? I want some soooooooo bad!
I just want to see that "pick a poop" device they've given you
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Old 02-16-2017, 02:11 PM   #2034
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I just want to see that "pick a poop" device they've given you
Must every thread turn into a "poop thread"
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Old 02-16-2017, 03:03 PM   #2035
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Must every thread turn into a "poop thread"
Especially next to the photos of those delicious looking Danish pastries!
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Old 02-16-2017, 10:17 PM   #2036
Lonewolf Ed Lonewolf Ed is offline
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To get your mind back on Danish pastry goodness, I offer these...
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Old 02-16-2017, 10:51 PM   #2037
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Originally Posted by Lonewolf Ed View Post
All of them? Did you miss the part where I STILL can't have any grapefruit juice? I want some soooooooo bad!
How do you drink that stuff?

Even when probably a lot of things make you feel nauseous, you still want grapefruit juice?

Blech!
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Old 02-16-2017, 11:05 PM   #2038
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All of them? Did you miss the part where I STILL can't have any grapefruit juice? I want some soooooooo bad!
That seems like the best part..

Actually, I do put a grapefruit in my sour mix.. just don't like the stuff by itself.
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Old 02-16-2017, 11:41 PM   #2039
Lonewolf Ed Lonewolf Ed is offline
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How do you drink that stuff?

Even when probably a lot of things make you feel nauseous, you still want grapefruit juice?

Blech!
Florida's Natural brand is tops. It is not bitter like some canned grapefruit juice is or generic brands. They let the fruit ripen before making the juice.
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Old 02-17-2017, 06:24 AM   #2040
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Originally Posted by Kram View Post
How do you drink that stuff?

Even when probably a lot of things make you feel nauseous, you still want grapefruit juice?

Blech!
I've gone through a couple of extended periods of appetite loss in my life when the mere thought of my favorite foods (e.g. bacon) made me nauseous. The first time, the only thing I could think of that sounded good was Taco Bell even though I've never really been much of a Taco Bell fan. The second time, it was Filet-o-Fish from McDonalds. It's kind of weird when that kind of thing is going on.
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